The Open Hands Initiative would like to introduce our new blog series that highlights various organizations who are doing inspiring work in fields that may include, but are not limited to Disability and Accessibility , Cross-Cultural Dialogue, Journalism , and Diplomacy. The featured guest bloggers come from different NGOs, nonprofits, and organizations whose goals and efforts align with our mission.
Our first guest post comes from FacingDisability.com, a web based organization that has created a platform of communication and sharing for those whose lives have been affected by spinal cord injuries (SCIs). FacingDisability.com has connected the friends and family members of people with SCIs from all over the United States, building a sense of community and understanding.
The Open Hands Initiative wrote a guest post for FacingDisability.com’s blog, which you can view here.

After a spinal cord injury occurs, families often find themselves in a very lonely place. It can feel like no one understands their new situation or the road of recovery that lies ahead. That is why the Hill Foundation of Chicago created FacingDisability.com, a new website designed to connect families suddenly coping with spinal cord injuries with the voices of experience.
FacingDisability.com has more than 1,000 videos drawn from interviews of over 100 people with spinal cord injuries, and their mothers, fathers, siblings, children and caregivers. They were all asked the same set of 48 spinal cord injury questions such as, “What was your greatest fear at first?” “Where did you get the best financial help and information?” “How has the injury affected your family relationships?” and “What do you wish you had known at the beginning?” Here’s what a few interviewees had to say.
Michelle, who became quadriplegic at 21 wished that “I would have automatically had known that I was always going to be myself. I don’t know what I thought the wheels were dramatically going to do to me, but I wish that I would have known that the things I enjoyed before, and the way I was before, was all going to be the same. I would just have to go about things in a different way.”
Darren, who became quadriplegic at age 20, said, “I wish that I knew that what other people think doesn’t matter as much. People look at you—so you’re different or they may have to make accommodations for you to get into something. I used to be so self conscious of that. I wish I knew that it doesn’t matter. I could have gotten over this a lot quicker.”
Mary Ellen, whose daughter became quadriplegic at age 15, was surprised about how normal her life has become. “To a large extent, we’re in many respects to where we were before the accident, and I never in the early years thought for a moment that we would reach that point. Certainly, we have to do things differently; family vacations are different and there are some things we can do, some things we can’t do. But we’re still able to pretty much do all the things as a family we did before. And instead of her disability being front and center, it’s become sort of a sideline.”
FacingDisability also Spinal Cord Injury Experts section, which is made up of over 200 videos of top spinal cord injury experts answering questions on their field of SCI medicine. The topics cover information on all the things people may want to know right away, such as “Spinal Cord Injury 101,” “Basics of SCI Rehabilitation,” “Adjusting to Social Life in a Wheelchair,” “Transition from Hospital to Home” and “Sex and Fertility after SCI.”
Connecting with someone who has “been there” is one of the best ways to deal with a new injury. FacingDisability has a “Peer Counseling” service, made for people who want to connect one-to-one through an anonymous email system. There is also a “Forum” section where you can ask questions, or share answers.
Finally, FacingDisability.com has over 300 of the best resources on the Internet in the “Resources” section.

FacingDisability.com was established by the Hill Foundation of Chicago. Their mission is to provide Internet-based information and support for people with spinal cord injuries and the members of their families. Connecting with the life experiences of others who have been there before often helps people find the strength and support to face their new lives ahead. For more information, contact FacingDisability at info@FacingDisability.com.